keeping in touch

It’s hectic around here so I am sorry that I didn’t mention that
we are working on getting a blog up on NoahsHope.com – the main
reason why I won’t be updating CarePages so much.

I was at the garage sale this morning – and while I wish we
didn’t have to do this – I’m happy to report it was very busy. I
cannot believe the help we received from old neighbors and old
friends and new ones too. Thank you to everyone who helped and
showed their support.

www.noahshope.com

We are updating our carepage less and focusing more on fundraising. There are such limited funds available to researchers that Batten families have to help out. We have a variety of fundraisers coming up and are listed on our website noahshope.com

SEPTEMBER 12 & 19 – Fundraising Garage sale in Jen’s childhood neighborhood
6618 Fairmount Dr.
Downers Grove, IL

9AM – 4PM
Tonie Harrington, long friend of the Farnaus’ is hosting this garage sale. Many, many people have helped her out. If you can offer an hour so so, please stop by and help spread the word.

October 10th – Kareoke Night at Shannahan’s in Woodridge, IL
Hosted by Jenny Bouquet & Rob Johan
These are friends of Jen from high school.

October 18th
Half-marathon in Des Moines, IA
Jagger Copley & Brett Perry are childhood friends of Tracy’s and are looking for pledges to goto Noah’s Trust as they run a 1/2 marathon

November 1st
NYC Marathon
Jen received an email from a woman in NYC who wants to run for Noah’s Trust (and Laine). She will create t-shirts and run for pledges in New York City.

There are 2 more links on our websites of articles posted in Marshalltown, IA and Downers Grove. We know the Tribune is working on a story and should run by next Tuesday – we think in the West zone only…let’s hope it runs full-run.

If anyone has any suggestions for fundraisers or media contacts, please contact Jen at jennifervanhoutan@yahoo.com

We are so blessed for the many, many prayers that are being offered for our children, Noah & Laine. Please do not forget about Emily – she is affected too…although does not have Batten Disease.

We just hope raising money and driving into the researchers can help our children – especially Lainey….you would never know she has Batten if you met her.

To a peaceful weekend. Jen & Tracy