Happy Halloween

Since our blog isn’t working yet because I haven’t had the time to figure it out I thought I’d touch base.

Noah is doing ok. He has had some intense PT and is pretty strong and just wants to go,go,go. He has lost quite a bit of vocabulary since last year. He tries so hard to talk and every once in a while gets a word out and is so proud of himself.

Laine has been put on anti-convulsants. Her behavior is rather challenging at times. So we can’t tell if it’s a 3 year old or medicine. She does love princesses so much and twirls around singing “Singing in the rain…” She is a hoot and usually answers questions with “sure”. For a while she was doing this nervous habit of chewing her hair, but not lately. She is a wonderful help taking care of her brother.

We have started Noah and Laine on some medicines that could help the neurons from breaking down and one for memory. And of course a wide variety of vitamins and supplements…

Our friends started a care calendar where they will take turns and help us out. Last night THe Weaver’s (Tracy’s Fraternity Bros family) came over and Tracy and I went to dinner. We ended up meeting a family and the daughter heard Tracy’s story and said “Oh yes, I know Noah’s Hope” She’s been following our story. That was uplifting to know that we’re getting the word out to strangers. We have to help make this disesae known cause it rapidly deteriorates the child and then it is usually too late to do anything. It was great to go out with my husband!

October was a very busy month for fundraising…Marshalltown Garage Sale, Karaoke Night and two separate runs for Noah’s Hope and the DuPage Doubles and DG Homecomers Groups getting involved. We do have quite a few events coming up in November. A spa is donating 100% of their proceeds to our cause next Friday. You can book a service or buy raffle tickets (great prizes!) Our neighbor is planning a girls night out – Pampered Chef (I am taking orders online too so let me know if you need fabulous products!) and other “vendors”, then my cousin is also having a Holiday Bazaar at her house just before Thanksgiving. Noah’s old pre-school will have a Hop For Hope Event. All is on our noahshope.com website. I have a hard time keeping up with all that is being planned, but am for ever grateful for everything people are doing.

Thank you for your prayers and concern for our family. It’s a daily struggle, but everytime we see Noah’s smile or Laine’s sweetness it’s like a rainbow has gone over us. And of course Emily keeps us hopping with everything she says and does.

Love – Jen & Tracy