Archive for January, 2010
Play Date for Hope – January 30th at Emmett’s
Noah’s Hope – Play Date for Hope spacerBuy Tickets
Downers Grove, Illinois 60515 Get Directions
Time out! Beat the chilly January blues by coming out to the “Play Date for Hope” fundraiser, a fun-filled evening of cocktails, laughter, and sports-centered games…all for a great cause!
All event proceeds will go to the Noah’s Hope Fund to support 5-year-old Noah VanHoutan and 3-year-old Laine VanHoutan as they fight the devastating effects of Batten Disease. At this time, Batten Disease is always fatal, usually between the ages of 8 and 12.
The Play Date for Hope fundraiser will be held on Saturday, January 30, from 6:00 p.m. to 10:00 p.m. at Emmett’s Ale House in Downers Grove, Ill.
The Play Date for Hope will feature an evening of sports-themed games for every skill level. Toss a beanbag! Make a tabletop field goal! Chance your luck with football squares! Win at sports bingo! Games will rotate throughout the evening to give you many opportunities to be crowned the champion and win fantastic prizes!
Register online by January 20 at www.signmeup.com/67794 and pay only $20 per person. Alternatively, register at the door on January 30 and pay $25 per person. Patrons will enjoy delicious complementary appetizers to fuel their competition, and a cash bar will be available. Game tickets may be purchased for $1 per ticket throughout the evening. Don’t miss this incredible opportunity to warm up your winter with an action-filled evening of games and laughter to benefit these two very special children.
The VanHoutan family would like to thank Emmett’s Ale House for donating their banquet room for this wonderful fundraising event.
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Noah Giggling
Last night while I was getting Noah ready for a bath I started tickling him…he giggled like I haven’t heard him giggle in a long time. I had to share this moment! It was so fun to see him laugh so hard. I hope it’s because of us reducing one of his anti-convulsants…he’s on 3.
Laine continues to have sleeping problems so we are trying to work out the best solution. It’s a long day when our sleep is interrupted 6-7 times during the night and she is awake and ready to start going for the day by 4AM…
The Girls Birthday – January 11th
Our little girls are turning 4 on January 11th. It’s hard to believe it was 4 short years ago when they came into our world and they make our world very interesting! Emily is writing and working on reading. Laine works hard to keep up with her and she does a decent job given her disease. They will start ballet/tap again tomorrow for the winter and spring session. Tracy and I find such joy in their dancing. Noah loves their end-of-class performances.
Happy birthday to our little girls!
2010 is a new year!
We are working on 2010 being a new year and to open up some new doors in the world of research and treatments.
Our entire family is amazed at the outpour of help from everyone who hears our story.
There are events being planned this year to help raise funds for potential treatment (NVH Family Trust) and via the DuPage Community Foundation – a donor-advised fund called “Noah’s Hope” .
The first event of the year will occur in our home town at Emmett’s (formerly Founder’s Hill). The details are in the events section. I wanted to let everyone know something interesting that happened last year…my co-worker’s (Haworth) entered in a contest for “what is your favorite charity and why” via People Magazine and supported by the Kevin Bacon Foundation – Six Degrees. People Magazine gave out 35 $1,000 prizes. Three of Haworth’s team members WON and directed the funds to Noah’s Hope. About a week later we received a letter from our School District about The Bacon Brother’s coming to Downers Grove and performing at the Tivoli. Tracy had a great idea to buy 10 tickets and auction them off the night of the Emmett’s event. We are hoping to somehow cross-paths with Kevin Bacon to let him know he’s performing in Noah & Laine’s hometown…and his contest directed funds to Noah’s Hope. So Tracy and I will make a date night and we have some other friends joining us for a concert at the “Tiv” within the first 6 rows (great venue).
Hope everyone new year is off to a great start and we have some great news to share this year…
Noah's Hope Website
