The Girls Birthday – January 11th

Our little girls are turning 4 on January 11th. It’s hard to believe it was 4 short years ago when they came into our world and they make our world very interesting! Emily is writing and working on reading. Laine works hard to keep up with her and she does a decent job given her disease. They will start ballet/tap again tomorrow for the winter and spring session. Tracy and I find such joy in their dancing. Noah loves their end-of-class performances.

Happy birthday to our little girls!

2010 is a new year!

We are working on 2010 being a new year and to open up some new doors in the world of research and treatments.

Our entire family is amazed at the outpour of help from everyone who hears our story.

There are events being planned this year to help raise funds for potential treatment (NVH Family Trust) and via the DuPage Community Foundation – a donor-advised fund called “Noah’s Hope” .

The first event of the year will occur in our home town at Emmett’s (formerly Founder’s Hill). The details are in the events section. I wanted to let everyone know something interesting that happened last year…my co-worker’s (Haworth) entered in a contest for “what is your favorite charity and why” via People Magazine and supported by the Kevin Bacon Foundation – Six Degrees. People Magazine gave out 35 $1,000 prizes. Three of Haworth’s team members WON and directed the funds to Noah’s Hope. About a week later we received a letter from our School District about The Bacon Brother’s coming to Downers Grove and performing at the Tivoli. Tracy had a great idea to buy 10 tickets and auction them off the night of the Emmett’s event. We are hoping to somehow cross-paths with Kevin Bacon to let him know he’s performing in Noah & Laine’s hometown…and his contest directed funds to Noah’s Hope. So Tracy and I will make a date night and we have some other friends joining us for a concert at the “Tiv” within the first 6 rows (great venue).

Hope everyone new year is off to a great start and we have some great news to share this year…